# @joaco_niemann on Instagram

- **Type:** Video
- **Original URL:** https://www.instagram.com/p/CVSzmAcjs2I
- **Gondola URL:** https://gondola.cc/posts/23078231-joaco-niemann-instagram
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/thumbnails/1e7e93747e.jpg
- **Posted:** 2021-10-21T14:22:42.000+00:00
- **Account Owner:** Joaquin Niemann (@joaconiemann) — https://gondola.cc/joaconiemann

## Caption

Hoy cumple un año nuestro Rafita 🎉🥳
Su tratamiento ha andado muy bien, tan bien que incluso el equipo médico se sorprende. 
Gracias al tratamiento conseguido él: esta vivo, solo necesita apoyo respiratorio cuando duerme de noche, come solo, logra sentarse y ha estado sanito.
Sus avances en movimientos son mas lentos, pero sigue prosperando dia a dia con sus terapias fisicas. 
Segun la escala CHOP, Rafa antes del tratamiento tenia 17 puntos de 64, ya va en 54 😎! Gracias a todos ustedes por el apoyo que han entregado para obtener este poderoso tratamiento!
Feliz cumpleañooos Rafita! 
///

Today Rafita is turning 1 🎉🥳.
His treatment has gone very well, so well that even the medical team is surprised. 
Thanks to the treatment, he is alive! He only needs respiratory support when he sleeps at night, he eats alone, he is able to sit up and has been healthy.
His progress in movement is a little bit slower, but he continues to get better day by day with his physical therapies. 
According to the CHOP scale, Rafa before treatment had 17 points out of 64, and he is now at 54 😎. Thank you for all of your support on his journey and in helping him get his life-saving treatment! Happy birthday Rafita! #SMA #SpinalMuscularAtrophy #Zolgensma #salvemosrafita

## Stats

- **Views:** 38,170
- **Likes:** 6,300
- **Shares:** 0
- **Comments:** 198

## Tags

salvemosrafita, spinalmuscularatrophy, sma, zolgensma

---
Copyright (c) Gondola