# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=S5fEoVu8zww
- **Gondola URL:** https://gondola.cc/posts/27555881-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/8f8c9ade63.jpg
- **Posted:** 2025-03-12T02:03:48.000+00:00

## Caption

Tuesday, March 11, 2025 - Week 11

CHCO Press Release
https://www.linkedin.com/posts/curesyngap1_syngap1-prommis-research-activity-7305258171642654723-5h2e fill spots, email info@curesyngap1 dot org

SYNGAP1 ProMMiS #SynGAProMMiS
https://curesyngap1.org/resources/studies/syngap1-prommis/

Need your Voice on Unmet Need
Please contact me with stories and permission to share. Mike@ 

PubMed is at 11 YTD
https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.1998-2025&timeline=expanded&sort=date&sort_order=asc

Willsey Lab on Gut Motility, congratulations to Kate McCluskey
https://pmc.ncbi.nlm.nih.gov/articles/PMC11885846/pdf/41467_2025_Article_57342.pdf

Citizen Health Data in there!
https://www.linkedin.com/posts/citizen-health-inc_citizenhealth-autism-guthealth-activity-7304881198676197376-ng3v
Citizen Health -  https://www.citizen.health/partners/srf or http://curesyngap1.org/citizen

Family Conf Video on Drug Repurposing
https://www.youtube.com/watch?v=1S_A1jO28-c - Corey, Lindsay, Zoe and Earl.  
Thank you Lindsay.

Unravel BioSciences Discussion/Podcast
Short: https://www.youtube.com/watch?v=xcB8pv2lKRI
Long: https://www.youtube.com/watch?v=CYb0ghaRKm8 
LinkedIn: https://www.linkedin.com/posts/unravel-biosciences_raredisease-combinedbrain-drugdevelopment-activity-7302440189782540289-u4sl

Bio-Repository and Roadshow Dates
https://docs.google.com/presentation/d/1IjaHILXj7AlBDlbTJgvYrkBS_0bnI8VCnTIiPXJ7JGM/edit#slide=id.g32f5fa46d32_0_3

April 24-25th Nashville, TN
June 14-15th Westminster, CO
June 18-21th St. Louis, MO
June 27-28th Phoenix, AZ
July 10-12th Boston, MA
July 18-19th Denver, CO
July 19-20th Westminster, CO
July 19-20th Windsor Locks, CT
Sept/Oct TBD Philadelphia, PA
Dec 4-5th Atlanta, GA

Share glowing reviews of SRF on Great Non-Profits!
https://www.cureSYNGAP1.org/GNP

ICD-10’s as discussed in #S10e163 (https://www.youtube.com/watch?v=iDvW7HfzSGA) next meeting cancelled.  Time to go for ICD-11s.
https://www.cdc.gov/nchs/icd/icd-10-maintenance/meetings.html

DoD Funding
https://umdf.org/cdmrp_cuts_action/

#MEDICAIDCANTWAIT
https://thearc.org/policy-advocacy/medicaid/medicaidcantwait/

Episode 164 of #Syngap10 
#Advocate #PatientAdvocacy #UnmetNeed #SYNGAP1 #SynGAP #SynGAProMMiS

## Stats

- **Views:** 113
- **Likes:** 7
- **Shares:** 0
- **Comments:** 3

## Tags

patientadvocacy, medicaidcantwait, s10e163, syngap1, slide, syngaprommis, syngap, syngap10, advocate, unmetneed

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