# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=ymCUn9YGMYQ
- **Gondola URL:** https://gondola.cc/posts/27555906-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/a8b5f4b9d6.jpg
- **Posted:** 2025-01-15T05:50:15.000+00:00

## Caption

SRF Roadmap Paper is published. Read and share with family and supporters. -  #S10e158
Wednesday, January 15, 2025

RESEARCH UPDATE
There are 313 papers on or related to SYNGAP1 since 1998, but 54 of those are in 2024!  So far 2 for 2025.
https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.1998-2025&sort=pubdate&timeline=expanded

Census = 1,530! https://cureSYNGAP1.org/Census, China was only 113, but now they are 246!
Check out these social posts on our https://cureSYNGAP1.org/SRFPaper 
https://www.linkedin.com/posts/curesyngap1_syngapresearchfund-syngap1-curesyngap1-activity-7285038902300569602-XTGJ
https://x.com/cureSYNGAP1/status/1879272983077781804
https://fb.watch/x6KdWuLSA8/

STUDIES AND TRIALS ARE HAPPENING NOW

https://docs.google.com/spreadsheets/d/1oQLNi85AUbISmcW0KbsgGn4cBK_4MNuvwGlKUUKLyIQ/

FUNDRAISING
Coast2Coast Challenge $359,280 Syngap.Fund/C2C 
FUNDRAISE https://syngap.fund/FR 
#Sprint4Syngap is launching… https://secure.givelively.org/donate/syngap-research-fund-incorporated/sprint4syngap-2025

VOLUNTEER SPOTLIGHT
Sara Driscoll - https://curesyngap1.org/team/volunteers/sara-driscoll/

CONFERENCE
Pre-register now: December 4 & 5 – https://cureSYNGAP1.org/Pre25 

VOLUNTEER 
Join us: https://curesyngap1.org/volunteer-with-srf/

SOCIAL MATTERS
- 1,260 YouTube.  https://www.youtube.com/@CureSYNGAP1 
- 3,906 LinkedIn.  https://www.linkedin.com/company/curesyngap1/
- 11,670 Twitter https://twitter.com/cureSYNGAP1
- 47k Insta https://www.instagram.com/curesyngap1/ 
- 464 TikTok https://www.tiktok.com/@curesyngap1

NEWLY DIAGNOSED?
New families have resources here! https://syngap.fund/Resources 

Podcasts, give all of these a five star review!
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917

Episode 158 of #Syngap10 
#CureSYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness  #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #F78A1

## Stats

- **Views:** 133
- **Likes:** 13
- **Shares:** 0
- **Comments:** 1

## Tags

intellectualdisability, epilepsyawareness, s10e158, id, autism, neurology, genechat, syngap10, epilepsy, raredisease, careaboutrare, syngapresearchfund, rarediseaseresearch, anxiety, patientadvocacy, autismawareness, curesyngap1, gcchat, f78a1, sprint4syngap

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