# @cheynotshy on Instagram

- **Type:** Image
- **Original URL:** https://www.instagram.com/p/CCJskX_nNYT
- **Gondola URL:** https://gondola.cc/posts/35829369-cheynotshy-instagram
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/c6a70d97ae.jpg
- **Posted:** 2020-07-02T19:30:52.000+00:00
- **Account Owner:** Cheyenne Davis (@cheynotshy) — https://gondola.cc/cheynotshy

## Caption

As a mother of a child with an FOD, this is the part I hate the most. Learning about any child that is suffering breaks my heart, but metabolic deficiencies always hit home. My chest hurts as I write this, and I clench my teeth to stop my tears. I can’t began to explain my personal fears but this isn’t about me, it’s about LeAnna. 

LeAnna is a two-year old, beautiful girl who has been diagnosed with MADD, Multiple acyl-CoA dehydrogenation deficiency, a rare metabolic disorder that is causing her heart to fail. Her body cannot break down fats and proteins, so they store in other places like her heart. 

The lack of research on her rare condition has caused three hospitals to deny her of the heart transplant they believe she needs. With so little research on her condition, she continues to be turned away. Her parents are searching for someone that specializes in metabolic disorders that can reduce her heart. Her doctors are saying her heart may not last another two weeks. She deserves a chance.  She deserves the right to fight.  She deserves to live. 

After speaking with her mother, they want to share LeAnna’s story.  Bring awareness to MADD, so that doctors can began to do the research and another family will not have to live this nightmare. Most importantly they want their daughter to live. 

I pray they find a hospital who will perform the transplant. I pray for her parents, sisters, and that God works magic through the hand’s of the doctors. Please send LOVE, PRAYER and ENCOURAGEMENT to her mother’s page sweetash0816 !! Share LeAnna’s story & GoFundMe account created by briseals to support the family. (Link in my bio) 

#fodawareness #vlcadd #mcadd #lchadd #madd #hadd #scadd #tfpd #fattyoxidation #fattyoxidationdisorder #raredisease #fodfamily #nonprofit #awareness

## Stats

- **Views:** 0
- **Likes:** 8,148
- **Shares:** 0
- **Comments:** 89

## Tags

tfpd, mcadd, fattyoxidationdisorder, vlcadd, scadd, fodfamily, hadd, awareness, fattyoxidation, madd, raredisease, nonprofit, fodawareness, lchadd

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