# @childrensomaha on Instagram

- **Type:** Image
- **Original URL:** https://www.instagram.com/p/CpNh2J6Ol8y
- **Gondola URL:** https://gondola.cc/posts/4472839-childrensomaha-instagram
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/e8c4950526.jpg
- **Posted:** 2023-02-28T15:38:31.000+00:00
- **Account Owner:** Children's Omaha (@childrensomaha) — https://gondola.cc/childrensomaha

## Caption

5-year-old Berkeley is one in a million. Last January, she was diagnosed with Hyper IgE syndrome—a rare genetic immunodeficiency syndrome affecting fewer than one per million people worldwide. For Brock and Leslie, Berkeley’s parents, the diagnosis was the “aha” moment and answer they’d been searching for after navigating countless infections, hospitalizations and surgeries. 

This #RareDiseaseDay, we celebrate and honor patients like Berkeley and the pediatric experts who help guide them in their journey. Hyper IgE syndrome, formerly known as Job’s syndrome, affects many systems in the body and, as a result, puts Berkeley in the care of various Children’s specialties including orthopedics, ophthalmology, immunology, dermatology, genetics and the bone metabolism clinic. 

With support from her family, twin sister and multidisciplinary care team, Berkeley has embraced her “new normal” and lifelong diagnosis with strength and confidence. She has grown comfortable with her port and even instructs grandparents, nurses and others on how to administer her IV medications. Berkeley is independent, creative and social, a Barbie enthusiast and loves cheerleading, Disney princesses and animals. 

“This is a journey,” Brock said. “We aren’t searching for a destination; we're trying to accommodate what a great lifestyle looks like for Berk. We'll be limited in certain things we can do, but she can still have a beautiful, fulfilling life.” 

#TheVeryBestForKids #hyperige #rarediseaseawareness #rarediseaseday2023

## Stats

- **Views:** 0
- **Likes:** 413
- **Shares:** 0
- **Comments:** 6

## Tags

rarediseaseday, theverybestforkids, hyperige, rarediseaseday2023, rarediseaseawareness

---
Copyright (c) Gondola