# @embracingecho on Instagram

- **Type:** Video
- **Original URL:** https://www.instagram.com/p/DRVMiMgkrR_
- **Gondola URL:** https://gondola.cc/posts/61853002-embracingecho-instagram
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/7ef95b50d5.jpg
- **Posted:** 2025-11-21T20:04:17.000+00:00
- **Account Owner:** Jaime Simpson (@embracingecho) — https://gondola.cc/embracingecho

## Caption

YOU KNOW YOUR BODY! Self advocacy or having someone who can advocate for you is important. Some neurologist are AMAZING inside and out BUT not all neurologists are created equal. 

They wrote in her notes that she was medication seeking and seizing for attention. When I read that, I was like YOURE JOKING RIGHT.. I went to her page and sure enough, everything she had been through shown in videos. 

What kind of brain tumor survivor who had to relearn to walk, had diagnosed strokes, focal seizures on an eeg, and more is out here having seizures in the middle of church (where many people think it could be demonic) just for medication?? 

I wish I could say she was the only one this is happening to. I’ve had positive EEG’s for epileptic seizures and still had normal EEGs when I wasn’t currently having a seizure. That’s normal. That being said, many seizures aren’t caught on an EEG if they’re starting deep within the brain. You may need to intracranial EEG. And focal seizures are notorious for being deep in the brain. Some of my EEGs show the second two seizures, but not the first convulsive seizure because they start so deep within the brain that it doesn’t pick up the first seizure. 

I have been invalidated and disregarded so many times. SO MANY other epileptics have too. This is why many epileptics and parents of epileptic children bring giant binders of their medical history with them. 

THIS patients heart was also giving poor EKG readings towards these seizures (that they are treating as PNES). This is also common with epilepsy, but also common in convulsive syncope. 

..My point is, if you’re this kind of doctor, why? Why are we not doing better for the patient? What happened to healthCARE? And why are you in this field if you can’t care about a patient? Why are we not believing patients anymore? Is it ego, laziness, the fact that she was a woman, ignorance? She deserved better.  That’s all. 

#EpilepsyAwareness #StopTheStigma #BelievePatients #NeurologyNeedsChange #InvisibleIllnessesAreReal #EpilepsyIsReal #SeizureAwareness #ChronicIllnessAdvocate #MedicalGaslighting #HealthcareReformNow #EpilepticVoices

## Stats

- **Views:** 46,874
- **Likes:** 1,591
- **Shares:** 0
- **Comments:** 61

## Tags

chronicillnessadvocate, invisibleillnessesarereal, healthcarereformnow, neurologyneedschange, epilepticvoices, seizureawareness, believepatients, medicalgaslighting, epilepsyisreal, stopthestigma, epilepsyawareness

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