# @embracingecho on Instagram

- **Type:** Video
- **Original URL:** https://www.instagram.com/p/DPhplqbkkWy
- **Gondola URL:** https://gondola.cc/posts/61853021-embracingecho-instagram
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/e1eb966143.jpg
- **Posted:** 2025-10-07T23:41:10.000+00:00
- **Account Owner:** Jaime Simpson (@embracingecho) — https://gondola.cc/embracingecho

## Caption

I honestly haven’t been doing the best with my seizures lately. You can see the bags under my eyes. I’ve been trying to avoid getting additional blood patches. My head has been a bit jumbled and my words aren’t coming out in the right order at times. Seizures (even the small focal ones) take a toll on you. However, I wanted to be here to support Miles amazing work. So thankful to be invited. I caught a short flight to LA because this film carries so much support and strength to those with Epilepsy. I met fourvalentines and she talked to me about her Levi. Levi passed due to SUDEP and there was a little tribute in the film for him. We talked for a bit and Echo gave her cuddles. For a moment she slipped “well no one wants to be around me because of the death”. I told her that epileptics WANT you to be heard more than anything because of that. She told me all about Levi & I could just feel how loved he is. Her story helps others with epilepsy to be heard and taken seriously. She cried and I held back tears. Sometimes we have to let each other borrow some strength in the Epilepsy community. lakebell and her daughter sat next to me. I talked to her daughter for a bit about our epilepsy stories. I could feel how much her daughter was loved the entire viewing. Echo CLINGED to her as well. I had a conversation with pearcejoza after the movie about how he portrayed Epilepsy so well. He told me that he didn’t want Epilepsy to be something people laughed at. He explained that he learned how to portray seizures based on Miles (director of this film’s) seizures. He was the perfect fit for the lead role of this film. 

Miles, you could not have done a better job. Every aspect of this movie tells a different story with a new perspective. The Epilepsy community is shining brighter because of you now. Thank you. 💜

#UnderTheLightsFilm #EpilepsyAwareness #EpilepsyWarrior #EpilepsyStrong #EndTheStigma #SeizureAwareness #InvisibleIllness #LifeWithEpilepsy #DisabilityRepresentation #EpilepsyAdvocate #NeurodiversityInFilm #ChronicIllnessCommunity #WarnerBrothersStudios #FilmPremiereNight #RepresentationMatters #DisabilityInHollywood #ServiceDogLife #WorkingDogInAction

## Stats

- **Views:** 217,777
- **Likes:** 4,032
- **Shares:** 0
- **Comments:** 61

## Tags

warnerbrothersstudios, epilepsyadvocate, underthelightsfilm, representationmatters, workingdoginaction, endthestigma, disabilityinhollywood, servicedoglife, epilepsywarrior, disabilityrepresentation, chronicillnesscommunity, neurodiversityinfilm, lifewithepilepsy, seizureawareness, epilepsystrong, invisibleillness, epilepsyawareness, filmpremierenight

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