# @embracingecho on Instagram

- **Type:** Video
- **Original URL:** https://www.instagram.com/p/DCaQfr6yte1
- **Gondola URL:** https://gondola.cc/posts/61853273-embracingecho-instagram
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/0ef5af8f84.jpg
- **Posted:** 2024-11-15T23:24:12.000+00:00
- **Account Owner:** Jaime Simpson (@embracingecho) — https://gondola.cc/embracingecho

## Caption

This Epilepsy journey has been mentally and physically taxing. I can’t cure Epilepsy but I was privileged to have doctors who could figure out why I was going into Status Epilepticus so often. 

This has been a rollercoaster and we found out a lot about of other health conditions while in Utah that we need to have a better handle on. However, this is a great start in the right direction. 

My PICC line was taken out during this trip and now I have a central tunneled catheter. It’s kind of like a port except that I can’t de-access it which is what is best for me currently. I take 6 medications through it + NS, LR, and TPN daily. 

This is my 2nd and 3rd blood patch. My first one unfortunately failed. This time I had a wonderful doctor & team performing the procedure who did it right with HIGH volume! The recovery is feeling boring because I feel okay to do things but I have to lay flat on my back and the blood needs to clot around the leaks. I really want this to work. I want my life back. ❤️‍🩹

#EpilepsyJourney #StatusEpilepticus #ChronicIllness #HealthAwareness #PICCLine #CentralCatheter #MedicalJourney #RecoveryProcess #InvisibleIllness #HopeForHealing #HealthcareHeroes #LifeWithEpilepsy #EpilepsyAwareness #MentalHealthMatters #ChronicPainWarrior #StrengthInStruggles #FindingSupport #HealingJourney #Resilience #EverydayCourage #LifeAfterEpilepsy #HealthAdvocacy #PatientStories #LivingWithEpilepsy #MedicalCommunity #EmpathyInHealthcare #OvercomingObstacles #WellnessJourney #HopeAndHealing #ChronicIllnessWarrior

## Stats

- **Views:** 109,444
- **Likes:** 3,950
- **Shares:** 0
- **Comments:** 154

## Tags

chronicpainwarrior, empathyinhealthcare, statusepilepticus, mentalhealthmatters, hopeandhealing, overcomingobstacles, livingwithepilepsy, chronicillness, resilience, healthadvocacy, medicaljourney, everydaycourage, findingsupport, chronicillnesswarrior, wellnessjourney, healthawareness, piccline, healingjourney, recoveryprocess, hopeforhealing, medicalcommunity, centralcatheter, healthcareheroes, lifewithepilepsy, epilepsyjourney, lifeafterepilepsy, patientstories, invisibleillness, epilepsyawareness, strengthinstruggles

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