# @embracingecho on Instagram

- **Type:** Video
- **Original URL:** https://www.instagram.com/p/DBrzYVsPnOe
- **Gondola URL:** https://gondola.cc/posts/61853336-embracingecho-instagram
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/bb44ee9fa6.jpg
- **Posted:** 2024-10-28T22:26:13.000+00:00
- **Account Owner:** Jaime Simpson (@embracingecho) — https://gondola.cc/embracingecho

## Caption

For me, living with Vascular Ehlers Danlos Syndrome means navigating a world that feels fragile, where even the simplest tasks can become monumental challenges. There are a lot more difficult symptoms but these are the ones that often go unnoticed! 🧬 Also ignore my face. I was just doing weird stuff in my kitchen while waiting for Ruben. 😅 PS you might relate if you have a diagnoses outside of a connective tissue disorder as well

#ConnectiveTissueDisorder #EhlersDanlosSyndrome #ChronicPain #InvisibleIllness #JointHypermobility #ChronicFatigue #AutoimmuneAwareness #HealthAwareness #DisabilityAwareness #AutoimmuneDisease #ChronicIllness #Spoonie #HealthJourney #RaisingAwareness #ChronicSpoonie #PainManagement #MentalHealthMatters #HealthCommunity #RareDisease #ConnectiveTissueAwareness #EDSAwareness #InvisibleDisability #SupportEachOther #ChronicIllnessWarrior #Fibromyalgia #ChronicFatigueSyndrome #Empowerment #Advocacy #HealthEducation #veds

## Stats

- **Views:** 120,913
- **Likes:** 2,437
- **Shares:** 0
- **Comments:** 54

## Tags

advocacy, autoimmuneawareness, chronicspoonie, mentalhealthmatters, raredisease, veds, healthjourney, connectivetissueawareness, supporteachother, spoonie, connectivetissuedisorder, disabilityawareness, empowerment, edsawareness, jointhypermobility, chronicillness, healthcommunity, chronicillnesswarrior, chronicfatigue, healthawareness, autoimmunedisease, painmanagement, ehlersdanlossyndrome, chronicpain, chronicfatiguesyndrome, healtheducation, fibromyalgia, invisibledisability, raisingawareness, invisibleillness

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