# @emmahemingwillis on Instagram

- **Type:** Image
- **Original URL:** https://www.instagram.com/p/DXMa4-XFQ9H
- **Gondola URL:** https://gondola.cc/posts/64375977-emmahemingwillis-instagram
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/0d309f4612.jpg
- **Posted:** 2026-04-16T13:22:37.000+00:00
- **Account Owner:** Emma Heming Willis (@emmahemingwillis) — https://gondola.cc/emmahemingwillis

## Caption

Standing in our nation’s capital this week felt exciting and deeply personal.
Since becoming an FTD and caregiver advocate, I’ve always dreamed of bringing this work to Washington, to help ensure that families like yours and mine are seen, heard, and supported at the highest level.
I was honored to join the Association for Frontotemporal Degeneration for their first-ever Capitol Hill briefing, bringing together caregivers, researchers, lawmakers, and those living with FTD to shine a light on a disease that is still too often misunderstood, misdiagnosed, and overlooked.
FTD is non-partisan. It doesn’t care if you’re a Republican or a Democrat. It walks into homes across America every day, without warning or mercy. The systems families are told to rely on just aren’t built for this disease.
I’m grateful to the members of Congress who are showing up, listening, and working toward real change. We must continue to push for greater awareness, stronger caregiver support, and sustained federal investment in research, because what I witnessed in DC is that progress is possible, and families cannot do this alone.

theaftd emmabrucewillisfund #endFTD #frontotemporaldementia #caregiversupport

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## Tags

endftd, caregiversupport, frontotemporaldementia

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