# @embracingecho on Instagram

- **Type:** Video
- **Original URL:** https://www.instagram.com/p/DZ5t01oy9bI
- **Gondola URL:** https://gondola.cc/posts/67019816-embracingecho-instagram
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/89355a446e.jpg
- **Posted:** 2026-06-22T20:46:12.000+00:00
- **Account Owner:** Jaime Simpson (@embracingecho) — https://gondola.cc/embracingecho

## Caption

The cries absolutely devastate me. Babies don’t understand. Halstie is starting to but how do you cope with this as a parent? I dislocated my jaw during this seizure. I didn’t include the entire seizure but I wanted to include the ictal cry. It happens because sudden muscle spasms force air out of the lungs and past the vocal cords. It is a known occurrence during Tonic-Clonic Seizures. I have temporal spread to focal and then bilateral tonic clonic seizures. This means the start of my “big seizures” may present with focal unaware seizures. I hope this advocates for families like ours. It’s not perfect but we try our best. When I feel okay, I try to snuggle Halstie and Payson and talk with them about it while we play. Ruben does a great job administering medication, filming for doctors, and helping the girls during situations like this. He’s only one person though and it’s not easy for anyone. I am switching seizure medications and I believe the lapse and switch in meds and time schedule triggered a seizure.  #epilepsyawareness #epilepticseizure #seizuressuck #disabilityawareness

## Stats

- **Views:** 1,711,189
- **Likes:** 123,161
- **Shares:** 0
- **Comments:** 2,723

## Tags

seizuressuck, epilepticseizure, disabilityawareness, epilepsyawareness

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