# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=iOLjUdVUtqo
- **Gondola URL:** https://gondola.cc/posts/6771422-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/0b03d52efd.jpg
- **Posted:** 2023-03-24T15:50:32.000+00:00
- **Account Owner:** SynGAP Research Fund (SRF) (@cureSYNGAP1) — https://gondola.cc/cureSYNGAP1

## Caption

Building the SYNGAP1 SRF House - using the Milken Fastercures Research Partnership Maturity Model - #S10e98

Milken Fastercures RPMM
- So much strong work and thinking here!
https://milkeninstitute.org/centers/fastercures/train/toolkits/RPMM 
- Three floors: Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible. - St. Francis of Assisi 
- Cool Tweet: https://twitter.com/LindsayOkamoto/status/1639017493007335425?s=20 

Why we need a house?
www.fpwr.org - www.jdrf.org - www.runx1-fpd.org 

Press is key!  Congrats to Peggy
https://www.newsandtribune.com/news/clark_county/floyd-family-seeks-to-lessen-funding-gap-for-rare-genetic-disorder/article_d16460f4-c8f8-11ed-a60c-170e5bfff4d6.html 

Amazing Webinars
- Jillian McKee - April 27th - https://syngap.fund/mckee 

Ciitizen SYNGAP1 count is at 211! Sign up or Update your Ciitizen Records
- Sign-UP https://ciitizen.com/syngap1 
- Sign-IN https://app.ciitizen.com/

#Sprint4Syngap - 36 days, April 29, 2023
- https://syngap.fund/sprint
- Fundraising page: https://secure.givelively.org/donate/syngap-research-fund-incorporated/sprint4syngap-2023 

#MDBRSRF - 79 days - June 10, 2023
syngap.fund/mdbr23

#SyngapConf - 252 days - book now, November 30, 2023
- Conf pre-registration link: Syngap.Fund/2023conf 
- We have signed with a hotel/venue, please stay tuned for room link
- Large Latin Contingent too, just another this morning.

There is so much work to do, volunteer Info@SyngapResearchFund.org 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here 
- https://www.syngapresearchfund.org/syngap10-podcast 

Apple podcasts: 
https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 98 of #Syngap10 - March 23,  2023 
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat

## Stats

- **Views:** 124
- **Likes:** 8
- **Shares:** 0
- **Comments:** 3

## Tags

id, autism, mdbrsrf, syngapconf, neurology, genechat, syngap10, epilepsy, raredisease, podcast, careaboutrare, syngapresearchfund, rarediseaseresearch, anxiety, patientadvocacy, autismawareness, s10e98, gcchat, sprint4syngap, intellectualdisability, epilepsyawareness

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