# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=ywDUuuGA8GA
- **Gondola URL:** https://gondola.cc/posts/69574003-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/2dd92fe643.jpg
- **Posted:** 2026-05-19T17:36:11.000+00:00
- **Account Owner:** SynGAP Research Fund (SRF) (@cureSYNGAP1) — https://gondola.cc/cureSYNGAP1

## Caption

Tuesday, May 19, 2026 - Week 21

Personal Update via Syngap Stories:
Page: cureSYNGAP1.org/stories41 
Post: https://www.linkedin.com/posts/syngap1stories-syngap1-curesyngap1-share-7462125026276777984-OVBr

#ThisIsOursToLose - Three steps to engaging friends with CURE SYNGAP1.

1. Share CURE SYNGAP1 Video - Burden, Hope & Progress - 1.1k views in 11 days.
cureSYNGAP1.org/Burden https://www.linkedin.com/posts/syngap1-curesyngap1-raredisease-share-7458298251893448706-jfWF

2. Send IMPACT REPORT - Tool for family, newly diagnosed & Fundraising.
cureSYNGAP1.org/Impact or cureSYNGAP1.org/Impact25

3. Ask to Donate
curesyngap1.org/donate/

CAMP4
Joining us at the Night of Impact (with Stoke, Acadia, BioMarin, Gondola & others) and…
https://www.biospace.com/press-releases/camp4-therapeutics-to-present-new-preclinical-data-demonstrating-cmp-002-improves-seizure-threshold-and-severity-in-a-model-of-syngap1-related-disorder

INAUGURAL SF NIGHT OF IMPACT, CA – 9 days
Join us this is our only Gala for 2026!
cureSYNGAP1.org/SF26

5TH SCRAMBLE FOR SYNGAP, SC – 137 days
Classic case of a small event becoming an institution!
cureSYNGAP1.org/Scramble26

CURE SYNGAP1 CONFERENCE - 198 days.
cureSYNGAP1.org/Pre26

USA: use your ICD-10, F78.A1: https://onlinelibrary.wiley.com/doi/10.1002/epi.70142

PUBMED
Pubmed 2026 is at 31. +10 vs the week. (61 last year was +9) https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date

SOCIAL MATTERS
4,964 LinkedIn.  https://www.linkedin.com/company/curesyngap1
1.58k YouTube.  https://www.youtube.com/@CureSYNGAP1
11.1k Twitter https://twitter.com/cureSYNGAP1
45k Insta https://www.instagram.com/curesyngap1

$CAMP closed at $4.56 yesterday.
https://www.google.com/finance/beta/quote/CAMP:NASDAQ

Like and subscribe to this podcast wherever you listen. https://curesyngap1.org/podcasts/syngap10
Episode 208 of #Syngap10 #SYNGAP1 #CureSYNGAP1 #Podcast #PatientAdvocacy

## Stats

- **Views:** 237
- **Likes:** 8
- **Shares:** 0
- **Comments:** 0

## Tags

patientadvocacy, curesyngap1, syngap1, thisisourstolose, syngap10, podcast

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