# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=en-xtULP8Yw
- **Gondola URL:** https://gondola.cc/posts/69574016-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/73c8fc3b5b.jpg
- **Posted:** 2026-04-14T21:36:58.000+00:00
- **Account Owner:** SynGAP Research Fund (SRF) (@cureSYNGAP1) — https://gondola.cc/cureSYNGAP1

## Caption

Tuesday, April 14, 2026 - Week 16

Census is 1,761
https://curesyngap1.org/blog/syngap1-census-2026-update-54-q1-total-1761

Trip to Texas for UT Arlington and Cook Children's
 – Systems innovation with Dr. Lal and Dr. Perry
 – My post:
https://www.linkedin.com/posts/graglia_raredisease-activity-7448087944466259970-MADW?utm_source=share
 – *** Dr. Lal’s post: ***
https://www.linkedin.com/posts/dennis-lal-71a8988a_epilepsies-neurodevelopmentaldisorders-raredisease-activity-7449111793991577600-sfXZ

ProMMiS patients – 164 unique patients, 96 of whom have had 2 visits & 46 others 3-5 visits cureSYNGAP1.org/ProMMiS

Citizen – 289 registered
https://www.citizen.health/ai-advocate/syngap1

Victoria Arteaga representing CURE SYNGAP1 at IBE Global Leaders Meeting 
https://www.linkedin.com/posts/victoria-arteaga-26913433_syngap1-rareepilepsy-dee-activity-7449587651885621248-UD9v

Newsletter 51 – cureSYNGAP1.org/NL51

SYNGAP1 Snippets 
You are in this for life. cureSYNGAP1.org/Snippets

Board meetings to approve budgets, fundraising has never been more important.

6th ANNUAL SPRINT FOR SYNGAP1, EVERYWHERE – 12 days - $169k! Go Tavilla.
17 teams raised $265K last year; this year, we have 24 teams who have raised almost $170K so far.
https://curesyngap1.org/calendar/sprint4syngap-2026

INAUGURAL SF NIGHT OF IMPACT, CA – 46 days
Join us this is our only Gala for 2026!
cureSYNGAP1.org/SF26

5TH SCRAMBLE FOR SYNGAP, SC – 174 days 
Classic case of a small event becoming an institution!
cureSYNGAP1.org/Scramble26


PUBMED
Pubmed 2026 is at 24. +8 vs the week. (61 last year was +9) https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date

SOCIAL MATTERS
4,869 LinkedIn.  https://www.linkedin.com/company/curesyngap1
1.55k YouTube.  https://www.youtube.com/@CureSYNGAP1
11.1k Twitter https://twitter.com/cureSYNGAP1
45k Insta https://www.instagram.com/curesyngap1

$CAMP closed at $4.64 yesterday.
https://www.google.com/finance/beta/quote/CAMP:NASDAQ

Like and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10
Episode 204 of #Syngap10 #CureSYNGAP1 #Podcast

## Stats

- **Views:** 76
- **Likes:** 3
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- **Comments:** 3

## Tags

syngap10, podcast, curesyngap1

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