# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=bGLeTaUckwI
- **Gondola URL:** https://gondola.cc/posts/69574031-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/b6c4c0bb2b.jpg
- **Posted:** 2026-03-06T16:46:16.000+00:00
- **Account Owner:** SynGAP Research Fund (SRF) (@cureSYNGAP1) — https://gondola.cc/cureSYNGAP1

## Caption

Friday, March 6, 2026 - Week 10
 
WHAT DO WE NEED $ FOR?
I talked in Episode 197 #S10e197 about scientific priorities, and in Episode 200 #S10e200 about areas of activity beyond science grants.  All of this is what we need to fund.
 
SPRINT FOR SYNGAP1
Sprint for SYNGAP is coming fast– 49 DAYS. Make a difference. Raise some money.
Get on the map!  Text sprint26 to 71777
https://curesyngap1.org/calendar/sprint4syngap-2026/
 
INAUGURAL SF NIGHT OF IMPACT
Also to raise funds, please join us in SF on May 28th. 83 DAYS. Thanks to the organizational team Justin, Zoe, Ed, Jessica, etc.
cureSYNGAP1.org/SF26 
 
NHS Matter
I talked in episode 198 #S10e198 about the importance of natural history studies. Check out this paper on Zuvenersen from Dravet to understand the long-term impact these studies could have.
https://www.nejm.org/doi/full/10.1056/NEJMoa2506295 Join ProMMiS and Citizen Health.
 
SHOUTOUTS
Rosie Davilla on Univision 
curesyngap1.org/rosie2026 - https://www.univision.com/local/dallas-kuvn/syngap1-el-diagnostico-que-cambio-la-vida-de-rosie-en-texas-video
 
#RareDiseaseDay Talks
Emily Barnes @ Quiver; Paulina and Brian Sheehan @ Third Rock; Mike @ SparkNS; John Hill & Allison CNBC Cures.
 
Beata’s double header SYNGAP1 Stories. Part 1.
https://curesyngap1.org/podcasts/syngap1-stories/beata-tarasiuk/
 
DSCIII
In addition to Colorado Children’s & Stanford we are now in a study at Boston Children’s, Rush and U Alabama aka UAB.  Attending kick off for this at the end of the month.
 
DATES TO TRACK
Scramble for Syngap - 5th annual on October 3 in S. Carolina in 211 DAYS cureSYNGAP1.org/Scramble26 
 
Conference in Denver CO!  271 DAYS.  Sponsorship options in our #Prospectus for industry are available here https://curesyngap1.org/prospectus  Science Day - cureSYNGAP1.org/SD2025Videos Family Day - cureSYNGAP1.org/FD2025Videos
See our entire library of webinars & videos on YouTube youtube.com/cureSYNGAP1 
 
BIOSAMPLES & EEGs!
Biorepository needs more samples. Check out the list and map here https://combinedbrain.org/roadshow/ and contribute both blood & EEGs. The data and research we do with these samples is invaluable.  Let us know if you are going, email our CSO@curesyngap1.org

PUBMED
Pubmed 2026 is at 12, just like last week but am I seeing some amazing manuscripts! https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date 
 
Two particularly cool papers:
HDAC Inhibitors https://pubmed.ncbi.nlm.nih.gov/41777621/ 
A positive missense causing cognitive resiliencehttps://pubmed.ncbi.nlm.nih.gov/41777621/
 
SOCIAL MATTERS
4,732 LinkedIn.  https://www.linkedin.com/company/curesyngap1
1,535 YouTube.  https://www.youtube.com/@CureSYNGAP1
11.2k Twitter https://twitter.com/cureSYNGAP1
45k Insta https://www.instagram.com/curesyngap1
 
$CAMP stock is at $4.59 on 5 Mar. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQ
 
Like and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10/
Episode 201 of #Syngap10 #CureSYNGAP1 #Podcast

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## Tags

rarediseaseday, curesyngap1, s10e200, s10e198, syngap10, podcast, s10e197, prospectus

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