# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=Y_6fT2Jdyhs
- **Gondola URL:** https://gondola.cc/posts/69574037-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/postThumbnails/fc3ef0c40c.jpg
- **Posted:** 2026-02-25T17:37:01.000+00:00
- **Account Owner:** SynGAP Research Fund (SRF) (@cureSYNGAP1) — https://gondola.cc/cureSYNGAP1

## Caption

Wednesday, February 25, 2026 - Week 9

Thank you Virginie, Eric & Paulina for being in Cold DC right now with the Everylife Foundation!  https://www.linkedin.com/posts/curesyngap1_raredc2026-syngap1-curesyngap1-activity-7432425642295586816-IVDQ

NATURAL HISTORY STUDY
Sign up for Citizen Health cureSYNGAP1.org/Citizen and ProMMiS cureSYNGAP1.org/ProMMiS
And now the Citizen Health App on iOS https://www.linkedin.com/posts/graglia_your-advocate-is-now-with-you-in-every-moment-activity-7432260543748579328--dva

Board meeting… key message, we are much more than fundraising, grants and patient support.  Here is our list of non-grant projects.

Fundraising
Regulatory - Industry
Regulatory - FDA
Clinical Trial Readiness
Standard of Care
Patient Engagement
Health Economics https://www.linkedin.com/posts/graglia_the-economic-impact-of-caregiving-for-individuals-activity-7431827551574011904-HvA4
Global Coordination
Next steps with NALL
Patient Support
Next steps with Nortriptyline

BIOSAMPLES & EEGs!
Biorepository needs more samples.  Check out the list and map here https://combinedbrain.org/roadshow/ and contribute both blood & EEGs.  The data and research we do with these samples is invaluable.  Let us know if you are going, email our CSO@curesyngap1.org

FUNDRAISING - SPRINT4SYNGAP
Sprint is April 25 - our calendar page - cureSYNGAP1.org/Sprint - has all the information in the following links:
- set up your team - cureSYNGAP1.org/Sprint26
- resource guide for your event - cureSYNGAP1.org/S4SGuide
- webinar #99 to help get you started - cureSYNGAP1.org/S4S25

Also, May 28, San Francisco, CA: cureSYNGAP1.org/SF26
Scramble for Syngap - 5th annual on October 3 in S. Carolina cureSYNGAP1.org/Scramble26

PUBMED
Pubmed 2026 is at 9, just like last week but am I seeing some amazing manuscripts! https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2026-2026&sort=date (Remember we had 18 in all of ‘18)

SOCIAL MATTERS
4,700 LinkedIn.  https://www.linkedin.com/company/curesyngap1
1,530 YouTube.  https://www.youtube.com/@CureSYNGAP1
11.2k Twitter https://twitter.com/cureSYNGAP1
45k Insta https://www.instagram.com/curesyngap1

$CAMP stock is at $4.70 on 24 Feb. ‘26 https://www.google.com/finance/beta/quote/CAMP:NASDAQ

Like and subscribe to this podcast wherever you listen.  https://curesyngap1.org/podcasts/syngap10/
Episode 200 of #Syngap10 #CureSYNGAP1 #Podcast

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- **Likes:** 9
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## Tags

curesyngap1, syngap10, podcast, 99

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