# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=cbsPDrECLrU
- **Gondola URL:** https://gondola.cc/posts/8557516-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/thumbnails/e3a3616ed5.jpg
- **Posted:** 2023-09-10T22:50:27.000+00:00
- **Account Owner:** SynGAP Research Fund (SRF) (@cureSYNGAP1) — https://gondola.cc/cureSYNGAP1

## Caption

Naya, Pods, ILAE, Warriors, Talking to Pharma, Monica H. is doing Cannonball! Another week in Syngap-land — #S10e114

Video - Thank you Alexis - https://youtu.be/xPbE0vg33eU - Dads in denial!  Could be a good t-shirt.
Invitae story - https://blog.invitae.com/real-stories-naya-e-c37930c2e83 

Pods - Review! Five stars! 
 - Channel :https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
 - S10: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1/id1560389818
 - Stories: https://podcasts.apple.com/us/podcast/syngap1-stories/id1667705687
 - Cafe SYNGAP1:: https://podcasts.apple.com/us/podcast/caf%C3%A9-syngap1/id1705809525

CHOP - Sign up! https://drive.google.com/file/d/1eCVGmQ5b3RfL0ZiMpjoWIgVpFaSfEVOh/view?usp=drivesdk

ILAE Dublin was a great success -  
 - Ana’s Tweet: https://twitter.com/CNSdrughunter/status/1699754342125847023
 - Ana’s Webinar: https://www.syngapresearchfund.org/webinars/treatments-in-development-for-epilepsy-syndromes-opportunities-for-syngap1

Warriors - Sign up - https://www.syngapresearchfund.org/syngap-warrior/addison

Conference - Sign up by Halloween - We need head counts.
 - Registration link: https://Syngap.Fund/Orlando  
 - Hotels ASAP: https://Syngap.Fund/2023hotel 
 - Shirts https://www.bonfire.com/srf-syngap1-conference-2023/ 

Presentations
 - Pharma - To follow https://syngap.fund/23  
 - UCB-Digital Health - Agenda - https://med.stanford.edu/ucbcollaborative/events/2023-digital-health-symposium.html#agenda

Sign up for Ciitizen. https://www.ciitizen.com/SYNGAP1/SRF/ 
 - It matters, this data is bringing data to companies & making SYNGAP1 more attractive.  SHARE YOUR DATA.
 - If you have issues, email Virginie and Mequel. 

CANNONBALL 3 is coming!  October 4-6.  Takeover coming soon.
 - Monica is going on the road! https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-012   

Share your time and blood too!
Volunteer - https://www.syngapresearchfund.org/volunteer-with-syngap-research-fund 

Donate to the biorepository in OH or IL: 
- Sept 22, Liberty Township, OH: IRF2BPL Foundation (Home 2 Suites, 7145 Liberty Centre Drive, Liberty Township, OH 45069)
- Sept 29, Chicago, IL: KCNQ2 Cure Alliance Conference, September 29th 2023 (Hilton Hotel Chicago 300 E Ohio St, Chicago, IL 60611

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here 
- https://www.syngapresearchfund.org/syngap10-podcast 

Apple podcasts: https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
Episode 114 of #Syngap10 - September 10, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat

## Stats

- **Views:** 117
- **Likes:** 8
- **Shares:** 0
- **Comments:** 0

## Tags

id, autism, neurology, genechat, syngap10, epilepsy, raredisease, podcast, careaboutrare, syngapresearchfund, rarediseaseresearch, anxiety, patientadvocacy, autismawareness, gcchat, s10e114, intellectualdisability, epilepsyawareness, agenda

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