# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=0OSuh1_wFEk
- **Gondola URL:** https://gondola.cc/posts/8674993-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/thumbnails/0bbd2f07ac.jpg
- **Posted:** 2023-09-19T04:40:14.000+00:00
- **Account Owner:** SynGAP Research Fund (SRF) (@cureSYNGAP1) — https://gondola.cc/cureSYNGAP1

## Caption

Congrats to…
 - Allan Blake on his airborne fundraiser for SRF UK
 - Aaron and Monica Harding on their Military Lifegiver Podcast (start at 7 minutes)
 - Beacon on their FDA approval on the Sleep Headband Dream 3S
 - Soiree 8/26 - $300K net raised by Suzanne 
 - Katrien on the ILAE #SYNGAP10 #S10e115 

Webinar coming up:
  Behaviour, Cognition and Sensory Processing in People with SYNGAP1
  Register: https://us02web.zoom.us/webinar/register/WN_tXX0ZKcgQqm9heZgf0AfDg
  Sept 28 @ 9am PT/ 5pm GMT

  Still a classic: Mike to FDA on SYNGAP1 For ORCA https://www.youtube.com/watch?v=AObE7NhSlmg&t=447s 

Events to mention
 - Global Genes, DEI - 9/18 - 9/23 - Vicky and Mike
 - 2nd Scientific Conference in Spanish (virtual) 9/23 
 - Cannonball 10/4-10/6; Brett, Peter, Monica & Reece listen to Stories Episode 12 MH!
 - Scramble 10/7 Julie Miles https://syngap.fund/scramble 
 - Park City Epilepsy Mtg 10/15 - 10/17; Mike, JR
 - Gala 10/21 Nancy Kessler https://syngap.fund/CLG3 
 - Conference 11/30 & 12/1 + Sea World or Disney 12/2

Conference - Sign up by Halloween - We need head counts.
 - Registration link: https://Syngap.Fund/Orlando  
 - Hotels: https://Syngap.Fund/2023hotel 
 - Shirts: https://www.bonfire.com/srf-syngap1-conference-2023/ 

Share your time and blood too!
 - Sign up for ciitizen!
 - Sign up for CHOP!
 - Volunteer!

Donate to the biorepository in OH or IL: 
- Sept 22, Liberty Township, OH: IRF2BPL Foundation (Home 2 Suites, 7145 Liberty Centre Drive, Liberty Township, OH 45069)
- Sept 29, Chicago, IL: KCNQ2 Cure Alliance Conference, September 29th 2023 (Hilton Hotel Chicago 300 E Ohio St, Chicago, IL 60611 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here 
- https://www.syngapresearchfund.org/syngap10-podcast 

Apple podcasts: https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917
Episode 116 of #Syngap10 - September 18, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat

## Stats

- **Views:** 97
- **Likes:** 6
- **Shares:** 0
- **Comments:** 0

## Tags

id, autism, neurology, genechat, syngap10, epilepsy, raredisease, podcast, careaboutrare, syngapresearchfund, rarediseaseresearch, anxiety, patientadvocacy, autismawareness, gcchat, s10e115, intellectualdisability, epilepsyawareness

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