# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=WRh9I6YIIpg
- **Gondola URL:** https://gondola.cc/posts/9202931-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/thumbnails/938abd4d91.jpg
- **Posted:** 2023-10-10T02:10:17.000+00:00

## Caption

“I’m afraid to Hope again…” & Melissa – Reflections on ENDD at CHOP, #UFDCure Cannonball, Scramble -  #S10e119

My trip summary to CHOP.
https://threadreaderapp.com/thread/1709627244275245117.html

Melissa and her family are remarkable. “Doing this for the next generation.”
https://www.syngapresearchfund.org/post/melissas-story

Why are we afraid to hope?  Because fear is winning.  Everything comes from Fear or Love.  Focus on the love.  Feed that one.
https://www.demellospirituality.com/love-or-fear/
https://www.urbanbalance.com/the-story-of-two-wolves/ 

#UFDCure Cannonball - October 4-6
$128,075.83 so far at 83.6%
https://www.youtube.com/watch?v=ilnPIwVy6oY 
https://www.syngapresearchfund.org/cannonball
https://x.com/UFDTech/status/1711488218636357818?s=20 

Scramble - October 7, 2023
Have you read the Syngap Story on Julie yet? 
https://www.syngapresearchfund.org/podcast-episodes/syngap1-stories-episode-019

52 Days until the Conference - Sign up by Halloween - We need head counts.
Registration & Hotels 
Conference and Wild Type Shirts
https://secure.givelively.org/event/syngap-research-fund-incorporated/syngap1-conference-2023-hosted-by-syngap-research-fund-srf

Share your time and blood too!
Sign up for ciitizen! Sign up for CHOP! Volunteer!
Give us 5 stars everywhere.  Like Apple podcasts!


Episode 119 of #Syngap10 - October 9, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat

## Stats

- **Views:** 150
- **Likes:** 8
- **Shares:** 0
- **Comments:** 1

## Tags

ufdcure, intellectualdisability, epilepsyawareness, s10e119, id, autism, neurology, genechat, syngap10, epilepsy, raredisease, careaboutrare, syngapresearchfund, rarediseaseresearch, anxiety, patientadvocacy, autismawareness, gcchat

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