# @curesyngap1 on YouTube

- **Type:** Video
- **Original URL:** https://youtube.com/watch?v=MGunXnaBGWc
- **Gondola URL:** https://gondola.cc/posts/9689462-curesyngap1-youtube
- **Thumbnail:** https://img.gondola.cc/tr:w-,h-,fo-auto/thumbnails/45e14ca267.jpg
- **Posted:** 2023-11-01T22:49:52.000+00:00

## Caption

Study Invitation - Everyone with a laptop can help us make an easy at home validated measure to de risk clinical trials.  Sign up now for this #SRFunded effort - #S10e122 #SRFFrazier 

We need endpoints and assessment tools.  We can help make it happen with this study.  Let’s get to 100 participants.  

#SRFFrazier Grant 1 https://www.prnewswire.com/news-releases/syngap-research-fund-announces-srffrazier-grant-to-dr-thomas-frazier-of-john-carroll-university-301219503.html 

How to join study! https://drive.google.com/file/d/1rbJ1zwX3UVDJzWq2oa8fWKL--Wik4gF-/view?usp=drive_link

Two papers already!!
Development of informant-report neurobehavioral survey scales for PTEN hamartoma tumor syndrome and related neurodevelopmental genetic syndrome
https://pubmed.ncbi.nlm.nih.gov/37045800/

Development of webcam-collected and artificial-intelligence-derived social and cognitive performance measures for neurodevelopmental genetic syndromes
https://pubmed.ncbi.nlm.nih.gov/37534867/ 

Raise funds for SYNGAP1 Research via SRF
https://syngap.fund/give
https://syngap.fund/gt23  https://givebutter.com/SwK5Gt

Register for the Dinner & Conference!
29 Days until the Conference - Join us!
https://www.syngapresearchfund.org/professionals/syngap1-roundtable-2023-syngap-research-fund 

#SyngapConf Conference Agenda!
#S10e120 described the agenda… https://www.youtube.com/watch?v=Q9U-Ggz_K2I 
Detailed Agenda is here https://drive.google.com/file/d/1iKD-ZpDICXcaU85oBj0uWVVWuGrLJWJl/view 

Give all three of our podcasts 5 stars everywhere.  
https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917 

This is a podcast subscribe!
https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1/id1560389818 

Episode 122 of #Syngap10 - November 1, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat

## Stats

- **Views:** 77
- **Likes:** 5
- **Shares:** 0
- **Comments:** 1

## Tags

intellectualdisability, epilepsyawareness, srffrazier, id, autism, srfunded, syngapconf, s10e122, neurology, genechat, syngap10, epilepsy, raredisease, careaboutrare, syngapresearchfund, rarediseaseresearch, anxiety, patientadvocacy, autismawareness, s10e120, gcchat

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