This is my hero. My 6 year old daughter who has fought against a very rare disease and never gives up. She’s my inspiration and I’m proud to be her daddy. Today is show your stripes day to help raise awareness and funds for those in the fight for their lives. If you can help rarediseases.org #showyourstripes #rarediseaseawareness #NORD #daughter #love #family #brave #fierce #daughterlove #dad #daddysgirl