Kevin Alexander, a 39-year-old with PKU, shares a memory from childhood when he accidentally spilled his formula all over his grandmother’s car, and even as an eight-year-old he knew that car would never be the same.
More info about the series:
This episode is part of an animated documentary series, called "The Low-Phe Life", about living with PKU—a rare metabolic disorder.
PKU or phenylketonuria inhibits a person’s ability to break down protein. People with PKU, like Kurt Sensenbrenner the series’ director, must adhere to a strict low protein diet of fruits and vegetables, and drink a supplemental formula multiple times a day for their entire life to avoid serious neurological and physical side effects. For reference, the average, non-PKU person consumes about 60 grams of protein per day, Kurt can only have seven.
Having to maintain such a tight regimen means one little mishap and things can go awry quickly! This series focuses on the times in life when things don’t go according ...