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Noa Fleischacker ’15 and Sarah Minion ’17 are the co-founders of Tight Lipped, an organization created to call attention to chronic vulvovaginal pain—an umbrella term to describe conditions that can cause things such as vulvar burning and itching, UTI-like symptoms, and pain when sitting. Using the grassroots community organizing skills they first honed as students at Oberlin, Fleischacker and Minion are working with universities, doctors, health care experts, and even government officials to ensure the medical community takes these conditions—and the patients who live with them—more seriously. “Everything that we do is in service to grassroots organizing,” Fleischacker says. “How do we actually make changes to hospital systems, research funding, and treatment options? These are all deeper systemic issues. Some of the organizations and people who have worked on this before us are creating support groups. But we’re explicitly like, ‘Yes, we want to build community and support each othe...

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  • grassroots
  • featurestory
  • chronicpain
  • magazine
  • oberlincollege
  • oberlinalumni
  • vaginalhealth
  • womenshealth
  • oberlin