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Tuesday, February 25, 2025 - Week 9 ADVOCACY - Thank you Jessica, Jaime and Vicky for repping SRF at ELF RD Week
linkedin.com/posts/curesyngap1_raredc2025-syngap1-advocacy-activity-7300237949831368705-FIRS
SPRINT4SYNGAP - April 26, 2025 Webinar:
cureSYNGAP1.org/S4S25
Guide:
cureSYNGAP1.org/S4SGuide
LEVERAGE ON OUR GRANTS #Finland #Missense:
linkedin.com/posts/graglia_kulttuurirahastontuella-skr2025-syngap1-activity-7296289488912191489-rWl-/?utm_source=share&utm_medium=member_desktop&rcm=ACoAAAAD8f4B7JC4TMss45Q8hrsq5kiceI0Z8HE
STUDY OF THE WEEK - Email
syngap-study@beacon.bio
Dreem:
curesyngap1.org/resources/studies/beacon-dreem-eeg-device-study-in-syngap1
Study Tracker page:
docs.google.com/spreadsheets/d/1oQLNi85AUbISmcW0KbsgGn4cBK_4MNuvwGlKUUKLyIQ/edit?usp=sharing
IMPACT REPORT NL43
cureSYNGAP1.org/NL43
ONLINE DID YOU KNOW We have a calendar now!
curesyngap1.org/calendar
Brochure is updated:
cureSYNGAP1.org/Brochure
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Posted on YouTube at
2/25/2025, 11:15:30 PM
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