Don’t give up on your SYNGAPian at any age, Go Aaron! and advocacy matters - #S10e160 Tuesday, February 4, 2025 - Week 6 CONVO - Parent of 18 year old Travel now. Get meds under control fast Don’t do this alone Don’t give up on the adults Find doctors who want to learn and think, not dictate. STUDIES OF THE WEEK - FRAZIER curesyngap1.org/resources/studies/tracking-thinking-skills-and-behaviors-in-syngap1-patients Don’t underestimate this tool, please take part in this study. Tracker page: docs.google.com/spreadsheets/d/1oQLNi85AUbISmcW0KbsgGn4cBK_4MNuvwGlKUUKLyIQ/edit?usp=sharing ADVOCACY SHOUT OUT linkedin.com/posts/sara-driscoll-mba-pe-ab904b49_rdla-syngap1-advocacymatters-activity-7290475540266831873-L2su/?utm_source=share&utm_medium=member_ios REGULATORY UPDATE - Feb 4 at 4PM EST. epilepsiesactionnetwork.org/post/calling-all-epilepsy-stakeholders-join-an-update-on-the-national-plan-for-epilepsy EF on EPILEPSY Instagram - Facebook - ...