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Matter of Time's premiere at Tribeca was nothing short of unforgettable. The film brought the room to tears and filled it with hope. Eddie Vedder followed with a stunning acoustic set, capping off a powerful night for the rare disease community.⁠ ⁠ Set against the backdrop of Vedder’s two emotional solo concerts in Seattle in 2023, Matter of Time is a powerful rock documentary about Epidermolysis Bullosa (EB)—a rare genetic disorder that causes painful blistering, mostly in children.⁠ ⁠ This is exactly what Tribeca is meant to be: a platform for bold, deeply human stories that move us, challenge us, and spark change.⁠ ⁠ Co-founded by the Vedders, EB Research Partnership is leading the charge toward a cure. Learn more at EBResearch.org or at the link in our bio. ⁠ ⁠ #HealEB #MatterofTimeFilm #EB #CureEB #eddievedder #Tribeca2025

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    • matteroftimefilm
    • eb
    • eddievedder
    • healeb
    • tribeca2025
    • cureeb