Did you know there are no major Black celebrities publicly living with Spinal Muscular Atrophy (SMA)? That silence doesn’t mean absence—it means underrepresentation. But change is happening. And it’s bold. 🗣️ Shelby Lynch is redefining fashion and visibility as a model and disability advocate. 🌍 Eddie Ndopu is a global UN leader and Oxford graduate using his platform to champion disability justice. ⚖️ Alexa Dectis went from child actress to attorney, using her voice to protect young creatives and demand equity in media. At TSOS “Do Good” Foundation, we believe representation matters. We honor every story that challenges the status quo—and every advocate who refuses to stay unseen. 🖤 #DidYouKnow #SMAAwareness #BlackHealthMatters #DisabilityJustice #RareNotInvisible #RepresentationMatters #DoGood365