As a mother of a child with an FOD, this is the part I hate the most. Learning about any child that is suffering breaks my heart, but metabolic deficiencies always hit home. My chest hurts as I write this, and I clench my teeth to stop my tears. I can’t began to explain my personal fears but this isn’t about me, it’s about LeAnna. LeAnna is a two-year old, beautiful girl who has been diagnosed with MADD, Multiple acyl-CoA dehydrogenation deficiency, a rare metabolic disorder that is causing her heart to fail. Her body cannot break down fats and proteins, so they store in other places like her heart. The lack of research on her rare condition has caused three hospitals to deny her of the heart transplant they believe she needs. With so little research on her condition, she continues to be turned away. Her parents are searching for someone that specializes in metabolic disorders that can reduce her heart. Her doctors are saying her heart may not last another two weeks. She deserves a...