"I'm not going to be the one to reap the benefit of studies like this. It's going to be the kid who comes after me, and that is why I do it."
Meet Camryn Berry, a biological sciences Ph.D. candidate from Livermore, Maine. As both a patient and scientist studying fibrous dysplasia β a rare genetic bone disorder β Camryn is turning her lived experience into research that's transforming care for others battling the same condition.
Read more about Camryn's journey in her own words:
π¬ Growing up with fibrous dysplasia meant 21 surgeries by the time I was a teenager. I felt like a passenger in my own health care journey β until I was 15 and met Dr. Andrea Burke at the National Institutes of Health. She was the first doctor to look me in the eye and ask if I wanted to learn about the science behind my medication. From that moment on, I knew this is what I had to do.
My academic advisor encouraged me to reach out to Boston Children's Hospital, where I'd been a patient volunteer. My resear...
Suggested Credits
Tags, Events, and Projects