Our Rare As One grantees are making patients’ experiences central to research — not only by building and connecting inclusive patient and research communities but also by setting research agendas that truly reflect patient priorities. As Kasey Woleben of cure_mito_foundation puts it, "Patients have unique insights and an unparalleled sense of urgency that no other stakeholders can match." #RareDisease #RareDiseaseAwareness #RareAsOne #MedicalResearch #Science #PatientDrivenResearch #RareDiseaseMonth