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Today is #rarediseaseday I live with Limb Girdle Muscular Dystrophy 2L, one of the rarest forms of Muscular Dystrophy. There are no treatments or cures for this progressive disease. It's been a struggle at times to relearn how to live my life with a disability but I try not to let it stop me. Whether it's reinventing myself in the kitchen or just navigating my new normal, I'm trying to lead by example to help break the stereotypes of what having a rare disease and disability looks like. Cheers to my fellow fighters around the world, facing up against all the countless rare diseases. May you never falter in the face of adversity and overcome any obstacles in your paths. Awareness helps more than any dollar can. So today of all days, consider sharing some of my posts to help bring eyes to the rare and hopefully one day the even the most uncommon diseases may have treatments.

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