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Today is Rare Disease Day... I was diagnosed with Limb Girdle Muscular Dystrophy 2L in 2021 at 38 and it has it's fair share of challenges but I think I've done the best i've can to navigate the changes to my body. I still workout and refused to give up on the things I've loved like shooting hoops but moreso golf. I've found a swing that's comfortable and allows me to keep myself out on the course and out with my friends albeit different than what it once was. Well, unfortunately there are times like this visit to the practice range, my biggest fear happens and my legs gave out while taking a swing. In those moments, so many emotions hit me. Frustration, embarrassment, and anger amongst others but I have to block em all out and just get back up. I know this is my reality now but I wanted to reshare this video that I captured while hoping to just get good footage of my swing as a way to get better as a way to educate, raise some awareness, and maybe inspire you in any part of your live...

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