Surprisingly, this has been the most embarrassing thing to post about despite the amazing creators on here who share their journey with similar diagnoses. I’m just so frustrated and disappointed in my body. Vascular EDS can contribute to Neuro-ophthalmic and retinal vulnerability. Epilepsy is strongly linked to neuro-ophthalmic dysfunction and visual processing instability. Regardless, it feels unfair. I wish I had this answer years ago. I wish I had that time to find myself again after knowing what may be coming — instead of hoping everyday that my vision is going to get better. Right now, these diagnoses are actually affecting me mildly compared to their full potential impact. Although I’m legally blind, I have much more vision than I could. I do things that I love still with the vision I have. This doesn’t automatically mean that I will become “fully blind” but it does mean that I might have to accommodate myself a little bit more in the future. Everest has always been a diabe...