I want it to stop — not just the seizures, but the way epilepsy steals pieces of my family every single day.
It’s not fair. Why am I stuck with a disease that causes relentless epileptic seizures? Why do my children have to witness this? When my husband is trying to save me, he asks Halston to help Payson, and that’s when my heart shatters. It’s not her job to help her little sister. It’s not her job to distract her while mom is seizing and dad is making sure I’m still breathing — while he’s injecting rescue medication, praying it works.
I know I look scary during these moments. This is our reality, and it’s the hardest part to share because this is where my heart breaks the most. There is no normalcy here. Not for me. Not for my husband. Not for our girls.
The entire day was spent trying to keep mom from seizing. My day disappeared. And when I finally came back to consciousness, it was late at night — seeing double, disoriented, exhausted. I finally had a little energy to do someth...
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