These are just small clips of seizures that lasted hours
Status Epilepticus is when seizures last more than five minutes or occur multiple times without regaining consciousness in between
You can see in these videos when my body would attempt to come out of it and then another would start - I popped a blood vessel in my eye from the intensity of these seizures in my face
In the beginning I could regain consciousness in between ‘smaller’ seizures and then I was totally gone - the end of the video is when I slowly started coming out of these
My husband texted me the next day and said “I just couldn’t help but think about how I’m going to tell Halston (our daughter) that you’re gone”
SUDEP or sudden death in epilepsy is a real fear for friends and family of epileptics
This is why I’m having to leave my family for a bit and seek help in Utah. I have a doctor there that might be able to help
November is Epilepsy month. Please keep us in your thoughts and prayers as we navigate worse...
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