At FCF, we know that hope grows through connection, research, and shared experiences. That’s why we encourage families impacted by FA to join our patient registry.
🔬Joining the FA registry benefits all individuals with FA and families worldwide by empowering researchers to work on solving the obstacles those with FA face.
For patients, getting involved means that the information collected may help provide opportunities for patients and researchers to collaborate in the rare disease community.
💫 Your involvement will take FA research further! Learn more and join here:
fanconiregistry.iamrare.org
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