"Eighteen years ago, when my daughter Lily was diagnosed with a brain tumor, I knew nothing. I guessed that brain tumors in 14-month-old babies were rare. I knew this diagnosis would devastate us, but I didn’t know if her tumor was “cancer” or even really understand how cancer worked. I didn’t know there were treatments and, if there were treatments, if they would leave Lily severely disabled. I didn’t know there were other families like ours, some just down the hall in the PICU, facing the same grim, terrifying diagnosis.
And I didn’t know if my daughter would survive.
She did, though. Today, Lily is 19 years old. This May marks 18 years since her diagnosis with a malignant pediatric brain tumor called ependymoma. It also marks the end of her freshman year in college.
The year Lily was diagnosed, 2007, the five-year survival rate for her tumor type was 75%. I know that sounds like the odds were in her favor. But, at the time of her diagnosis, I had a different perspective: there...
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