facebook pixel
@curesyngap1
What’s your neuro emergency plan? twitter.com/cureSYNGAP1/status/1646170843503034368 Congrats to Dr. Frazier on the FIRST NET paper: twitter.com/cureSYNGAP1/status/1646573476353044481 Thanks to Kevin for going to Gatlinburg - Kevin twitter.com/cureSYNGAP1/status/1646530060227346433 - ORCA twitter.com/cureSYNGAP1/status/1646212570649604097 Thanks to Brain & Life, part of AAN for this article "How Parents Advocate for Their Children with Rare Diseases” brainandlife.org/articles/after-their-children-were-diagnosed-with Sibling day John youtu.be/J5oBo9zcRUE LGS youtube.com/watch?v=kR1nWSEZPfY Webinars McKEE 4/27 syngap.fund/mckee SMITH 5/11 syngap.fund/smith Ciitizen SYNGAP1 count is over 2101 - Sign-UP ciitizen.com/syngap1 - Sign-IN & Update app.ciitizen.com Rare News Updates Hot off Presses, Stoke is talking about TANGO and mentions their SYNGAP1 work with Acadia https:...

 62

 1

 62

Credits
    Tags, Events, and Projects
    • intellectualdisability
    • epilepsyawareness
    • frogs
    • id
    • autism
    • mdbrsrf
    • syngapconf
    • neurology
    • genechat
    • syngap10
    • epilepsy
    • raredisease
    • podcast
    • careaboutrare
    • syngapresearchfund
    • rarediseaseresearch
    • anxiety
    • patientadvocacy
    • biomarkers
    • autismawareness
    • gcchat
    • s10e100
    • sprint4syngap