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What’s your neuro emergency plan?
twitter.com/cureSYNGAP1/status/1646170843503034368
Congrats to Dr. Frazier on the FIRST NET paper:
twitter.com/cureSYNGAP1/status/1646573476353044481
Thanks to Kevin for going to Gatlinburg - Kevin
twitter.com/cureSYNGAP1/status/1646530060227346433
- ORCA
twitter.com/cureSYNGAP1/status/1646212570649604097
Thanks to Brain & Life, part of AAN for this article "How Parents Advocate for Their Children with Rare Diseases”
brainandlife.org/articles/after-their-children-were-diagnosed-with
Sibling day John
youtu.be/J5oBo9zcRUE
LGS
youtube.com/watch?v=kR1nWSEZPfY
Webinars McKEE 4/27
syngap.fund/mckee
SMITH 5/11
syngap.fund/smith
Ciitizen SYNGAP1 count is over 2101 - Sign-UP
ciitizen.com/syngap1
- Sign-IN & Update
app.ciitizen.com
Rare News Updates Hot off Presses, Stoke is talking about TANGO and mentions their SYNGAP1 work with Acadia https:...
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