How is the podcast doing? - Episode 1 - 93 in ciitizen, 750 patients, on our first Sprint… youtu.be/aGDEc8Uwy-k - Episode 100 - 212 in ciitizen, 1,215 patients, on our 3rd Sprint! What you can do this week? - Take the education survey forms.gle/YZJZmJavMNKNEBg88 and consider joining our advocacy group. - Tell me if you have any GI biopsies planned. - Plan your travel - Biorepository Roadshow - See end of shownotes or docs.google.com/presentation/d/1Ps3n6f62yQ9lMEsON-vbgvyOKiO8TohawZcUByxVg8g/edit?usp=sharing - Annual Conference - Preregister Syngap.Fund/2023conf Any great press? - Polancos on TV twitter.com/cureSYNGAP1/status/1643967039214850048 - Fosters in the KC Star twitter.com/cureSYNGAP1/status/1643357789966704643 - Axonis/Tang Grant twitter.com/cureSYNGAP1/status/1643602756375298048 Rare News Updates - ONCE UPON A GENE - EPISODE 181 - Helping Undiagnosed Patients Who Experience Symptoms of Rare Disease Lukas Lange is the ...