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Rare Disease Day 2023 was epic and you should have been there. Sprint and Webinar update. #S10e96 RD Advocacy with Everylife Foundation was Epic. -
everylifefoundation.org/rare-advocates/rare-disease-week
- Join us next year! Be in cool pictures like this -
twitter.com/rareadvocates/status/1631421473842667520
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twitter.com/RareAdvocates/status/1631038634936741890
- Here were our asks: -
everylifefoundation.org/wp-content/uploads/2023/02/ELF-FY24-Appropriations_One-Pager.pdf
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everylifefoundation.org/wp-content/uploads/2023/02/BENEFIT-Act_One-Pager_Feb-2023.pdf
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everylifefoundation.org/wp-content/uploads/2023/02/Rare-Disease-Caucus-One-Pager_2_22_23.pdf
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everylifefoundation.org/wp-content/uploads/2023/03/Ask4.pdf
#Sprint4Syngap -
syngap.fund/sprint
- Fundraising page:
secure.givelively.org/donate/syngap-research-fund-incorporated/sprint4syngap-2023
- 18 Teams! Fourteen are already raising funds: Team ...
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