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Wednesday, May 6, 2026 - Week 19 Congrats to GETA, CURE SYNGAP1 Australia & CAMP4 for a great weekend.
linkedin.com/posts/syngap1-epilepsy-ugcPost-7457791427486466048-j8SB
WEBINARS! CURE-ID Webinar tomorrow! Register now. Thu May 7, 2026 1:30pm – 3pm (PDT)
cureSYNGAP1.org/cureID
Next week, especially NY families, while you are registering, please make sure to go to this one with Dr. Buxbaum from Mt. Sinai.
curesyngap1.org/seaver
linkedin.com/posts/curesyngap1_curesyngap1-syngap1-rarediseaseresearch-activity-7457507565527044096-dDEK
Longitudinal Data Matters - Every six months or more! Study list! 1. CURE SYNGAP1 CONNECT
curesyngap1.org/connect
2. Citizen Health
citizen.health/ai-advocate/syngap1
3. Combined Brain 4. ProMMiS
linkedin.com/feed/update/urn:li:activity:7450196488300728320
& Rare-X, the same week. 5. OR DSC. #S10e 6. CURE-ID for Drug responses. Webinar: Thu May 7, 2026 1:30pm – 3pm (PDT)
cureSYNGAP1.org/cureID
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Posted on YouTube at
5/6/2026, 10:14:13 PM
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