Tuesday, April 14, 2026 - Week 16 Census is 1,761 curesyngap1.org/blog/syngap1-census-2026-update-54-q1-total-1761 Trip to Texas for UT Arlington and Cook Children's – Systems innovation with Dr. Lal and Dr. Perry – My post: linkedin.com/posts/graglia_raredisease-activity-7448087944466259970-MADW?utm_source=share – *** Dr. Lal’s post: *** linkedin.com/posts/dennis-lal-71a8988a_epilepsies-neurodevelopmentaldisorders-raredisease-activity-7449111793991577600-sfXZ ProMMiS patients – 164 unique patients, 96 of whom have had 2 visits & 46 others 3-5 visits cureSYNGAP1.org/ProMMiS Citizen – 289 registered citizen.health/ai-advocate/syngap1 Victoria Arteaga representing CURE SYNGAP1 at IBE Global Leaders Meeting linkedin.com/posts/victoria-arteaga-26913433_syngap1-rareepilepsy-dee-activity-7449587651885621248-UD9v Newsletter 51 – cureSYNGAP1.org/NL51 SYNGAP1 Snippets You are in this for life. cureSYNGAP1.org/Snippets Board me...