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Episodes 39 and 40 include Polish connections between co-host Jo Ashline and her guest Beata Tarasiuk, Mom to Kasia, who was diagnosed in 2020 at the age of 3 years old. In this short clip, they discuss overwhelming grief experienced after the diagnosis and the choice to embrace the CURE SYNGAP1 community. Listen to the full episode at
cureSYNGAP1.org/Stories
Follow CURE SYNGAP1 @cureSYNGAP1.org: ► LinkedIn:
linkedin.com/company/cureSYNGAP1
► Facebook:
facebook.com/cureSYNGAP1
► Instagram:
instagram.com/cureSYNGAP1
► X:
x.com/cureSYNGAP1
► BlueSky:
bsky.app/profile/cureSYNGAP1.bsky.social
Connect with CURE SYNGAP1 for family support:
facebook.com/groups/SyngapResearchFund
Connect with the Syngap Global Network for family support (Global):
facebook.com/groups/SyngapGlobalFamilySupport
#CureSYNGAP1 #SYNGAP1 #Syngap #IntellectualDisability #LearningDisability #Epilepsy #Autism #Seizures #SYNGAP1S...
Posted on YouTube at
4/7/2026, 6:29:31 PM
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