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Wednesday, February 25, 2026 - Week 9 Thank you Virginie, Eric & Paulina for being in Cold DC right now with the Everylife Foundation!
linkedin.com/posts/curesyngap1_raredc2026-syngap1-curesyngap1-activity-7432425642295586816-IVDQ
NATURAL HISTORY STUDY Sign up for Citizen Health
cureSYNGAP1.org/Citizen
and ProMMiS
cureSYNGAP1.org/ProMMiS
And now the Citizen Health App on iOS
linkedin.com/posts/graglia_your-advocate-is-now-with-you-in-every-moment-activity-7432260543748579328--dva
Board meeting… key message, we are much more than fundraising, grants and patient support. Here is our list of non-grant projects. Fundraising Regulatory - Industry Regulatory - FDA Clinical Trial Readiness Standard of Care Patient Engagement Health Economics
linkedin.com/posts/graglia_the-economic-impact-of-caregiving-for-individuals-activity-7431827551574011904-HvA4
Global Coordination Next steps with NALL Patient Support Next steps with Nortriptyline BIOSAMPLES & E...
Posted on YouTube at
2/25/2026, 5:37:01 PM
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