For 25 years, Xavius planned his life around pain.
Cold weather. Travel. Even jumping into a pool could trigger a sickle cell disease crisis.
Then, in search of new possibilities, he found pediatric hematologist Dr. Christopher McKinney and enrolled in a gene-editing clinical trial here at Children's Colorado.
After 40 days in the hospital, he arrived at a place he never thought possible: freedom from the pain and limitations that had shaped his life since birth.
“I didn't have to worry about the things that I did before,” Xavius says. “I could go out in the cold without a coat on and even tried cryotherapy without going through a crisis."
Today, Xavius is studying to become a physician and looking toward a future that once felt out of reach.
“Sickle cell is a tough disease and it's really hard to explain to people around you,” Xavius says. “But you can find a way to channel the darkest parts to help someone else and be positive."
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