Today, during World FTD Awareness Week, Robert Kolker’s The Vanishing Family is officially out.
This book tells the deeply personal story of a family living with an inherited form of FTD caused by a change in a gene called MAPT.
The Vanishing Family brings together this family’s lived experience with the science and research that could lead us toward treatments, not only for FTD, but potentially for other forms of dementia too.
It’s available today wherever books are sold. I hope you will read it, share it and learn more about this extraordinary family and the work being done to move FTD research forward.
🧠 FTD fact: 60% of FTD cases are sporadic, meaning there is no family history. 40% of cases are known to be familial or genetically driven by an identified genetic mutation causing disease.
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#geneticFTD#MAPT#endFTD