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Friday, October 2, 2026 — Week 40 CENSUS — 1,871 AND GROWING • Q3 census: 1,871 known patients, +65 this quarter. • First patient in Rwanda. USA +11, China +16, Brazil +6, France +4. • Finding patients matters more than ever as trials approach. cureSYNGAP1.org/Census COMBINEDBRAIN — RARE RESEARCH ROUNDTABLE • Wonderful Rare Research Roundtable on Genetic Neurodevelopmental Disorders. COMBINEDBrain is a gift to the rare neuro community — hug them when you see them. combinedbrain.org/RR-RGND • Dr. Emma James of Encoded, chair of our IAB, posted about the meeting. linkedin.com/posts/emma-james-71759a1a_the-combinedbrain-research-roundtable-on-ugcPost-7511223599165472768-jDkI CURE SYNGAP1 CONFERENCE — DENVER • 9 Family Legacy Sponsors, up from 8 in 2025. • Thursday Rare Reception — free, register: cureSYNGAP1.org/RR26 • Friday Family Dinner at Henry’s: cureSYNGAP1.org/Henrys • Conference registration ends OCT. 31. cureSYNGAP1.org/Reg26...

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