Do you know there are 300 million people worldwide living with a rare disease? This means that 5% of the global population is affected by a rare disease during their lifetime. That is a LOT!
People living with a rare disease experience a variety of unique challenges, such as delayed diagnosis, limited treatment options, socioeconomic barriers and unequal access to healthcare to name just a few.
Today, we bring awareness to these rare diseases to help shine a light on the millions of people affected with the hope of enhancing research, treatment and awareness to bring about equitable access to healthcare.
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