At just 14 months old, Daniela’s life changed forever.
"She wasn't growing, she wasn't thriving, she wasn't eating,” said Daniela’s mother, Nicole. “They did bloodwork, and later that day, the doctor called and said, ‘Pick her up right now, get her to the emergency room.”
Additional testing revealed the unimaginable: thalassemia, a life-threatening blood disorder affecting Daniela’s ability to create healthy red blood cells.
“Her hemoglobin was a four,” Nicole said. “That's pretty much almost dead. We caught this just in time. We were in the hospital for five days — seven blood transfusions. There's absolutely no cure for thalassemia. She receives blood transfusions every three weeks for the rest of her life. We have just hit her 200th blood transfusion."
Now 13 years old, Daniela is all too familiar with how it feels right before and after a blood transfusion.
“I’m really tired, just feel like laying down and sleeping — I just don’t want to do anything,” Daniela said. “After a bl...