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Inspiring Events, Family Video & Important Studies. *Note the CINEMAS TRIAL for Epidiolex - #S10e107 RECENT EVENTS MDBR Blog
syngapresearchfund.org/post/mdbr-2023-everything-we-want-to-c-happening-for-syngap1-camaraderie-community-collaboration
Paddle Slap video
youtube.com/watch?v=F9SaHPzd5bU
Paddle Slap blog
syngapresearchfund.org/post/syngap-paddle-slap-is-a-thing
Family Video and Fundraiser: Shaeffer Video
youtube.com/watch?v=Z_dI059yPeM
Shaeffer Fundraiser
secure.givelively.org/donate/syngap-research-fund-incorporated/support-srf-for-story-s-19th-birthday
SRF in the World: SRF in Mexico - Our Voice is Getting Louder blog
Syngap.Fund/Voice
SRF in Poland -
twitter.com/beatasyngap1/status/1664996361585197057?s=20
STUDIES ENDD S1 NHS - Email
ENDD@chop.edu
to sign up and please cc
mike@curesyngap1.org
,
lauren@curesyngap1.org
&
sydney@curesyngap1.org
-
drive.google.com/file/d/1ASUkKQOgjbs9hkJVCJ40N
...
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